• Julie Barnes

January 16, 2020

Maverick's Update

Only What Matters in Health Information Policy

  1. Thought-provoking new Health Affairs blog post by Christine Bechtel, et al. about consumers’ desire to access their health data, and the need to “get serious” about a new national privacy framework for app developers. A nice, new overview of the national privacy law debate is provided by Kirk Nahra here. Concerns about whether big tech is protecting consumer health data properly is compounded by the fact that no tech firms directly weighed in on the interoperability proposed rules (see Politico piece); but that hasn’t stopped anyone from lobbying and threatening lawsuits.

  2. ONC’s released its latest 5-year strategic plan for federal health information technology -- a roadmap for federal agencies and private sector alignment -- for public comment (due March 18). It emphasizes that APIs are an important part of allowing people and their providers to share data -- an echo of the CMS interoperability proposed rule.

  3. Notes from various note-takers on the JP Morgan Health Care Conference this week in San Francisco: Axios Day 1, Axios Day 2, Axios Day 3, FierceHealthcare, CBNC, HealthLeaders, ModernHealthcare.

One Thoughtful Paragraph

Michael Lewis (best-selling author of MoneyBall, The Big Short, and a host of other well-researched books) has a new one out that somewhat accidentally addresses federal oversight of data: Fifth Risk. The book is mostly a scorching critique of the Trump transition team’s failure to learn about the government agencies it was about to oversee. An interesting aside is how the U.S. Department of Commerce would be more aptly renamed the “Department of Data” or “Department of Information” (p. 160), or as a former senior Bush official called it the “Department of Science and Technology.” (p. 163). Lewis goes on to describe Commerce’s massive data-collecting enterprise (“collects twice as much data as is contained in the entire book collection of the Library of Congress”), how it collects and makes sense of all the country’s economic statistics, and includes the National Institute of Standards and Technology -- the country’s primary cybersecurity and information standards agency that is designed to promote innovation and industrial competitiveness. If the Department of Commerce does all this, and already employs Nobel laureates and information scientists… maybe this is where we should be looking to oversee our nation’s data -- including health data?

77 views0 comments

Recent Posts

See All

July 29, 2021

Maverick's Update Only What Matters in Health Information Policy The 2021 Olympics will be remembered, not only because it is happening in the middle of a once-in-a-century global pandemic (see 1920 S

July 22, 2021

Maverick's Update Only What Matters In Health Information Policy This week, Amazon launched AWS for Health and launched its former CEO into space. (That second bit may be a stretch, but Jeff Bezos did

July 15, 2021

Maverick's Update Only What Matters In Health Information Policy On this day 222 years ago, the Rosetta Stone was discovered -- cracking the code on how to translate Egyptian hieroglyphics. We have co